Insurance approvals and bureaucratic demands added layers of frustrating complexity.
Over the years, daily hospital visits shifted to managing Michelle’s education with specialized tutors.
Subtle exclusion from mainstream activities and persistent doubts about her future independence were constant companions.
Now, just weeks before Michelle’s 22nd birthday, a critical meeting looms with a panel deciding her long-term care.
I’ve delayed arranging family discussions, avoiding conversations about Michelle’s wants or needs.
The weight of the next steps feels insurmountable.
Silence between us feels heavier than ever.
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